First to the ICU staff at TCCH.THANK YOU all.i could not have gotten this far in one piece without you all.
Today I met another family that is in a very similar set of medical circumstances. today is their tough day. i shared our story with them and hugged them.
I know how lucky my family is, and that as far as science and medicine is concerned every single thing that could be done was done, and Chris probably should not be here, but he is and i am grateful.
My heart goes out to this other family beause their "Loved one" did not make it. I am so sorry for their loss, but through this other family's tradegedy i know even more how lucky my family is. for that i thank them.
-Sunday
The kids and i went to church for the first time Sunday morning we were invited by a friend from the ICU. its Templeton Community Church. I'm glad we went. we will go again. the kids had a great time and got to bring home pictures they drew.they put them up on daddy's wall in his room.
Sunday the Dr did a broncoscopy. it went well they got good samples and cleaned him out well. i got to stay in the room and help a bit and watch what went on. the staff was awesome about teaching me what i was seeing and explaining what was happening.it was really interesting.
later that day i took the kids to Cheeseborough Pumpkin farm in Templeton. we have gone there every year since Bailey was born. it's an awesome place.the kids each got to pick out their own pumpkin and one little one to decorate for daddy. we took a bunch of photos. Grammy, Papa, Andrea and gidget puppy went with us.
-Monday
Today was our 6 yr wedding anniv. what a ride it has been. he was teasing me and having a good time with me today. since it is our anniv i stopped and got some breakfast at hoovers beefpalace. they have been so awesome at the beefpalace. Connor came by with papa and visited. the nurses found child patient gowns and then we put small gloves on him and in he goes. Bailey still is not comfortable coming in yet.Connor even sat on the edge of Chris's bed and gave him a hug. that made daddy smile. When Chris smelled my breakfast he said feed me. he was feeling hungry for the first time and he is on tube feeding so he is on perfectly measured food but that feeling is a good sign.
-Tuesday
The big thing today was changing his trake. the surgeon took out the long trake and put in a standard length trake. this is in hopes of helping Chris cough a bit less. i learned how to gently use the trake suction today so i can help Chris better. His sense of humor is returning. he told me to shush with a grin, and bopped me in the butt with his foot. he is still very frustrated at being ill but he really is getting much better his numbers and ability's prove that.
For anyone that would like to come see Chris the visitor hours are 11am-3pm and 5pm-8pm. the hospital suggests that you do not bring kids under 16 in. but if you cant avoid it. don't worry.
we hope to have the gown and glove precautions lifted in the next couple of days.we do have kid size gowns available if needed.
Talk soon
Amanda
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Hi Amanda!
ReplyDeleteOMG!!! I am so glade to hear that Chris is doing better! As you know I have been sick or I would stop by and see him. I am thankfully getting better but still have a nasty cough. We have finally moved in to our home in Paso, I can’t wait for you to come see it! I have my infusion in Monday morning and if I don’t have any symptoms in illness I will stop by and see you guys.
I had a dream about you two the other night. I dreamt that he opened his eyes and smiled and then reached out for your hand. Sounds like that dreams was pretty accurate so far. I can’t wait until he gets to come home. We love you and remember you can call us anytime for anything at all. I’ll text you my new home number today.
Love you! - SAM